This week an invite came down from the USOC to attend a charity event up in Huntington Beach. Ive always believed that the talent given to me as an athlete brings with it a responsibility to give back to the community and those supporting me, so I do my best to fill requests when I can. Every now and then one comes along that gets me really excited because its a cause I have a personal connection to, and that was the case this weekend.
Pipeline to a Cure is a charity event benefitting the Cystic Fibrosis Foundation (CFF). Its an annual dinner and silent auction co-chaired by surfing LEGENDS Laird Hamilton and Dave Kalama. I think because I am such a terrible surfer it amplifies my respect and admiration for these rippers, the Ocean is no joke and the thought of meeting some of the guys and gals that can master it was a big selling point for going. But the real motivating factor to battle LA traffic and drive up there was the cause itself. Cystic Fibrosis is a super rare terminal disease that causes mucous build up and infections in the lungs, pancreas, and digestive system. Life expectancy just 50yrs ago used to be elementary school, but with the advancement of modern technology and drugs, those living with the disease can expect to live into their 30′s and beyond.
Cystic Fibrosis Foundation
Today there is viable hope for a cure, a drug in the works that could give 80% of those with CF a chronic diagnosis instead of terminal and this event was all about raising money for that research. Studies have show that those with CF that surf have reduced symptoms- as opposed to those that don’t- so all night we kept hearing about the “special connection” between the ocean and CF. It was a strange mix of high rolling LA elites, surfers, families with CF, Olympians, and guys like Mike Ness from Social Distortion (who sat at the table behind me) all united in a single cause for a cure.
Pipeline to a Cure

My connection to CF goes back to my childhood in Cedar Hills, Ut. I grew up with two boys down the street that have CF. Blaine and Spencer would have appeared to be average kids playing in the cul-de-sac to a passerby, and we did have fun days in that cul-de-sac, but I remember them missing months of school on end, being told I couldn’t ride bikes with them because they were too sick, and visiting them in the hospital hooked up to tubes and machines.
They eventually moved away from our neighborhood but our families stayed in touch and I am happy to report that both boys are men now and still winning the battle against the disease. After I went to the event last night I sent a message to Blaine asking how he was and his response made me laugh:
“Funny story, recently was in the hospital. Long story short; called & said Bullshit to the doctor and was immediately discharged for being a ‘Hostile Patient’. So remember not to swear at your doctors when you go thru the hospital
”
Glad to hear your in good spirits Blaine.
My husband Mike and I were trying to keep track of how much money was raised and lost count after $150,000. Lots of cool custom surfboards and artwork at the silent auction and we managed to walk away with a piece for our house. Big thanks to the USOC for the invite and opportunity to attend. I was inspired from the stories last night and hope to see the day when this disease is cured.


One more week of training in CV then its off to London for the Olympic Test Event! Yeaa!